As if there would ever be a good time to have cancer, now is definitely NOT one of those times.
Morgan spent the first part of 2020 exploring a new option for treating her cancer. An FDA approved drug for adult cancers that showed promise in a few kids with neuroblastoma. It offered a lot of home time and minimal side effects, and at first, it seemed to be working to reduce her pain and disease burden.
It was not able to give her lasting relief, and her pain returned at the peak of this season of uncertainty due to COVID. Along with pain, disease and years of chemo wreaked havoc on her bone marrow, leaving her platelet-dependant. A decision was made by Morgan and her team to try a moderate chemo regiment followed by a stem cell ‘rescue’ of her own harvested stem cells. The stem cells, we hope, will fill her marrow and grow into healthy blood cells, so she won’t require weekly transfusions.
We checked into All Children’s in St Pete on March 30th, after nearly three weeks of self-quarantine for Morgan’s safety, to start five days of chemo, followed by stem cell rescue. All was going as planned, until last night. Morgan had a cough for weeks, normal pollen-related stuff that developed into something much more severe over a few short days.
Long story to say- her stats began to drop, a chest x-ray showed pneumonia, and since we are in a pandemic- she and I were carted to the ICU for Morgan to be tested for COVID. I am isolated with her, neither of us is allowed to leave the room, and the nurses treat us as if we were positive, with all the gear and precautions that come along with this deadly disease. It was a scary night that turned into morning with no sleep and not many answers.
We are still waiting for her results. We don’t know what will happen next.
We do know that she feels a little better this morning, she isn’t requiring as much oxygen, and we are finally, at noon, laying down to get some sleep.
Please pray for those in the hospital today, tomorrow, and in the months to come. The providers and the patients. This is a very scary time. It may not look like it at the grocery store or the beach but this is serious. Please stay home. I would give almost anything to have Morgan SAFE AT HOME.
Thanks for your prayers, we know our girl is loved by friends near and far. She is inconvenienced, annoyed, and tired. She is also ready to see her friends, get in the kitchen to cook, and sleep in her own bed. We all are.